Association of Birth Defect Children, Inc.
Charitable organization started by parents in 1982.
Children's Craniofacial Association
A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families.
Cystic Hygroma
An article explaining this disorder and a support group for sharing.
Cystic Hygroma and Fetal Hydrops
From bereaved parents. Site has an explanation of cystic hygroma and more resources.