Adolescents Psychological Complications of Chronic
Information from The Child Health Library of Children's Hospital of Pittsburgh.
Bandaides and Blackboards
Supports kids, teenagers and adults on dealing with growing up having a medical problem. Kids are advised on dealing with teasing, what to expect in a hospital and how to play pranks. Teens are offered expert advice, poems and encouraged to share stories, for instance. Adults may find ideas to tell the class, to deal with siblings, to learn to cope with illness. Also demonstrates how to correctly respond to any child with a medical condition.
Care Coordination Guidelines for Children
Florida Department of Health Children?s Medical Services Network describes family centered care, integration of care coordination. Includes assessment steps, tips and ideas and forms.
Children and Grief
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
Chronic Illness: New and Old Ideas to Care for Chi
Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project.
Coping in Parents of Chronically Ill Children
Assessment and Intervention Strategies article in Pediatric Nursing describes parent stressors, coping assessment tools, nursing assessment tools and a framework for intervention.
Dealing With a Health Condition
Explains teenagers how to cope, to take control, deal with others.
Living with Childhood Illness and Disability
Resources page by the Center for Children with Special Needs includes handouts on safety, Disability Act, school preparation, the Internet.
Pain and Chronic Illness in Children
Short paper on the importance of pain management.
Parental Advise on Coping with Chronic Illness of
Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
Promoting Resilience in Youth with Chronic Conditi
Paper on family centered care, describes impact, principles, assessment, healthy family functioning.
Shared Vision
Complete article (also as PDF) on longterm needs, financial and medical planning.
Starbright Foundation for Seriously Ill Children
Empowerment Programs and chatrooms, videos, comic books and cd-roms. Topics: school re-entry, coping with hospital life, radiation therapy; reintegration after burn injury.
Teenagers and Coping with Chronic Illness
Tips and strategies for parents with newly diagnosed teenagers.
The Child With a Long-Term Illness
AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
What is a Chronic Illness?
Explains to children what their ill friend or relative experiences and what they can do themselves.