Support Groups
DermatomyositisSupport Yahoo! Club, HealthBoards Myositis Bulletin Board, JDMS Kids to Pray For, Juvenile Rheumatic Diseases, MAA Myositis Bulletin Board, Myositis Forum, Myositis Support Group Discussion Forum, NerveAndMuscle.org, OurMyositis, Request a Prayer
All About Shelby: A JDMS Journal
Created to help monitor Shelby's symptoms, progress, and general well being. Listing of her treatments, medications, andlab results. Description of Juvenile Dermatomyositis.
Dermatomyositis
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Healthubs
A brief definition of polymyositis, followed by links to overviews, full text articles and support groups.
Jordan's Juvenile Dermatomyositis Diary
The diary of a 10 year old girl diagnosed with this rare disease including her treatment and progress.
Julia's Juvenile Dermatomyositis (JDMS) Diary
How one family is dealing with this rare auto-immune disease that affects the muscles and skin.
Lenor's Journey
Read how the author deals with a diagnoses of Polymyositis and Raynaud's Phenomenon and later with Pulmonary Fibrosis.
MDA Dermatomyositis page
Background and references, provided by the Muscular Dystrophy Association.
Myositis Association of America (MAA)
A non-profit organization committed to helping people with inflammatory myopathies through a variety of information and support services.
Myositis NW
Information and resources about inflammatory Myositis diseases. Accessible gardens, emergency preparedness for the disabled, support groups plus the author's personal site.
Polymyositis
Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Stan's Polymyositis Site
Providing detailed, up-to-date information on diagnosis, treatment, therapy, and a diary.