Organizations
Cell Therapy Research Foundation, Facioscapulohumeral Muscular Dystrophy Society, Focus On the Cure Foundation, Foundation to Eradicate Duchenne, Inc., Logan Paige Foundation for Myotonic Dystrophy, MDA Europe Foundation, Muscular Dystrophy Association (Australia), Muscular Dystrophy Association (South Australia), Muscular Dystrophy Association (USA), Muscular Dystrophy Association of New Zealand
Personal Pages
About Muscular Dystrophy, Angels Among Us, FacioScapuloHumeral Muscular Dystrophy, Haynes Family DMD Info, Irina's Cozy Corner and SMA Page, Jeff Grey, JeffSpace: The Webpage, Justin's Locker Room, Kevin M. Rudolph's Exciting Site, Living with Duchenne Muscular Dystrophy
A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
Becker Muscular Dystrophy Information Exchange
Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
DMD Information
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
DMD Information and Resources for Teachers
Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
DMD Options
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
DMD Pioneers
Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
DoctorBach.com
This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
Duchenne/Becker Muscular Dystrophy
Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
Duchennes
Provides links to medical and non-medical organizations and people with Duchennes problems.
FSH-MD Support Group
Provides support for those with Facio Scapulo Humeral and their carers.
General Practice Notebook - Duchenne muscular dyst
Clinically-oriented information.
HealtHub
A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
Muscular Dystrophy Community
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
National Registry of Myotonic Dystrophy and FSHD P
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
NINDS Muscular Dystrophy Information Page
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).