Information about the disease, a medical survey, where to get help, publications and a chat room for support.

General information, including associated conditions, plus inheritance patterns.

A support group for the families and carers of those affected by this condition. Includes information and reports, letters, and resources.

Definition, symptoms, signs and treatments. Includes support group information plus an illustration.

A positive personal account.

provides a summary, list of synonyms, and the major features.

Information sheet by the National Institute of Neurological Disorders and Stroke, including symptoms, treatment and prognosis.

Information sheet compiled by National Institute of Neurological Disorders and Stroke with general information, and a list of organisations.